Childhood Memories Made— Playing Stratego!

I played a lot of board games often with my siblings and cousins growing up. So many incredible memories formed.

One of my favorite games I played with my brother was Stratego.

Yesterday, I finally introduced my kids to this amazing strategy game. I rented it from the library with the original intent to play with Noah. He wasn’t interested at the time so I started a game with Amelia.

She had fun and during the second game I let Josiah move some of the pieces. He was quick to understand the concept of the Miner being able to defuse the bombs and the Scouts being able to move farther than the others pieces.

Avila enjoyed taking my pieces off the board. I had to prevent her from taking my flag piece several times. 😆😆😆

Board-gaming is one of my favorite hobbies and I’m thankful to have been able to forge more memories with my kids playing this “new” game with them!

Thank you for sharing!

On Autism and Fatherhood: An Exclusive Interview with Andrew Garofalo


Editor’s Note: This interview was conducted via email communication in September 2019. Some of the answers provided by the interviewee were edited to provide clarity for the reader. The integrity of Andrew’s answers was not compromised in the editing process.


Describe the special needs of your daughter

Evangeline was born with tethered cord syndrome (lipomyelomeningocele), which is a type of spina bifida. At 4 months old she required a surgery to detach her spinal cord from a large lipoma on her lower back.

At 3 years old she had a second surgery for cosmetic purposes to remove the large lipoma at the base of her back. Hopefully, there are no other surgeries for the future (the cord could re-attach, but it is unlikely in her case).

When was your daughter diagnosed with autism?

At about 3 1/2 years old Evangeline was diagnosed with autism spectrum disorder. She has been delayed mostly in speech, but due to her spina bifida, she has also had physical therapies to strengthen her legs and improve her walking. She walks very well, but she still does not have the lower body strength and mobility of a normal child her age.

Overall, Evangeline is doing well. Though a bit delayed in certain areas, once she gets the hang of something, she usually excels at it very quickly.

What challenges do you face as a parent to a child with special needs?

My wife and I face many challenges. Evangeline is able to receive most of her therapies at her school (she is currently enrolled in a special needs pre-school program), but she still has many regular appointments with various doctors and specialists in addition to her normal pediatric care (e.g., orthopedist, neurosurgeon, neurologist).

Evangeline looks a little different than most other kids and her behaviors stand out. Because of this, we are aware she may be teased by other kids as she gets older. Though Eva is well-behaved most of the time, she has certain ticks (she might make a strange noise now and then). She has certain rituals too. Some include singing a song she heard in a cartoon when the microwave is on or closing the front door anytime someone leaves our house.

If she is not able to do her rituals or do them the way she wants to, she often becomes distressed and cries. We try not to accommodate her rituals because we don’t want to reinforce them, so we patiently allow her to go through the process and console her when she is distressed.

How do you think these issues will change in the future?

My wife and I also have some concern over Eva’s future. We don’t know how well she will fit in with other people as she gets older and also how she will fit into the workforce as an adult. And sometimes I think about how she will be cared for after my wife and I pass away.

Hopefully there is a lot of time before she has to deal with that (Julie and I are in our 40s), but it is a reality that I still think about. Evangeline has two older siblings who love her very much, so when my wife and I pass we hope they will be there for her if she needs it.

How has raising a child with special needs impacted your approach to the liturgy?

We have not had parishioners with similar struggles approach us, but we have a group of close supporters we are linked to through a retreat called Emmaus here in the Miami area. When Eva was going through her surgeries we had a strong prayer community within the Emmaus men and women at our parish. Our friends at the parish are still interested in Evangeline’s progress. They love her!

Eva has been generally well-behaved at Mass, but sometimes during quiet times she will make strange noises (not like “normal” fidgeting or talking that young kids do) or she may want to sing a song (not so quietly). She seems to be growing out of that now. We have noticed that her peculiar behaviors usually come and then go after a while.

We have had to leave Mass early only once and we have had to take her outside to quiet down maybe a half dozen times ever. Thankfully, Eva shows an interest in the parts of the liturgy including the Our Father and some of the music. I think Mass is just part of her routine now.

What trials have you experienced?

Those uncomfortable moments when Eva is disruptive during Mass and I get the feeling some people around us might be annoyed and not understand she has ASD. Mostly we do our best to be respectful of the Mass and the other people there. We  ignore any unfriendly looks we might receive from a very small minority of people there. It is harder when we are away from home and visit other parishes because they do not know her there.

What joys have you experienced?

Seeing Eva put her hands in the prayer position during the Our Father with a big smile on her face and seeing her become enraptured by any particular song during the Mass.

We are united in constant prayer for Evangeline and all other special needs children. God bless you.

 

Thank you for sharing!

Red Wagon Ruminations

The great Irish poet Oscar Wilde once penned, “With freedom, books, flowers, and the moon, who could not be happy?” While I definitely would not dispute any of those items on his list, I recently came across an ordinary item that provoked a spirit of joy and gratitude that I would most certainly add to Wilde’s list! Before I do that I have a riddle for you, “What has four wheels, colored in red, and brings happiness?? Answer: While, technically a crimson corvette, may still be correct—the answer I was looking for was a red wagon! 

 

Over the past week we celebrated Christmas with my wife’s side of the family. One of the gifts that my father-in-law gave to my kids was a red wagon. I assembled the crimson coach while watching Sunday football. When my two year old woke from his nap his eyes lit up and shouted, “Wheels, wheels!” So far this week, I have taken the kids for a ride at least 5 times.  The following exchange between my 5 year-old daughter and I demonstrates how a simple children’s toy brings happiness.


 Daughter: “Wagon freedom!”

Me: “What does that mean?”

Daughter: “Freedom means I am happy.”


J.R.R. Tolkien once wrote, Little by little, one travels far. His words perfectly summarized our wagon experiences. Through merely traveling a few blocks, either around our neighborhood, or to and from the elementary school, the short trip brought an immense amount of knowledge. From the click-clacking of the cotter pins as the wheels turned to the giggles of my children as I lugged them behind me, I traveled down Memory Lane to the nostalgia of my childhood and simpler times. 

Experiencing Christmastime with the attitude of gratitude, not only brings out the best in the season, but also the unexpected. Although at face value, a red wagon is not the most alluring, expensive, or glitzy gift, the joy it brought me and my childrencertainly exceeded expectations and brought joy!

Thank you for sharing!

Crossroads

“All Christianity concentrates on the man at the crossroads,” wrote G.K. Chesterton. I came across this quote earlier this week as I read Orthodoxy. Immediately, I picked up my mechanical pencil off the living room floor and underlined this concise, but brilliant message. As a former cross country runner, street intersections always remind me of the choice I had as a runner. Which path should I take? Do I take the easy and high trafficked path [normally I feel motivated by an audience of automobile drivers on the busier streets to help me continue to run] or do I take the road less traveled? Little did I realize how Chesterton’s statement would be actualized in my life. Less than a day after reading that passage, I arrived at a junction.

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Some brief background is needed as I believe God has prepared me for this moment for a while now. My youngest child was evaluated by early childhood developmental professionals and diagnosed with some learning and cognitive disabilities. Along with this challenge my wife started a new teaching job. Bills seem to continually pile up with little end in sight [at least immediate end]. Over the past few months I struggled with anxiety and my vocation in this world. I knew that I was meant to be a husband and father, but sometimes I felt like I needed to do more, to be something more, and to provide more light to this world.

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Counseling sessions and anxiety medication help me cope with the daily stresses of this ever-changing and chaotic world. Thankfully, my son was approved to receive weekly special education services to assist him in limiting his incredible tantrums and frustration levels [he was at a point where he started banging his head against the ground and hurt himself!] and increasing his ability to socialize and communicate. Small gains are being made, yet he has a long road ahead.

Together with counseling and medicine, listening to Christian music daily and reading literary Catholic giants like Chesterton and Tolkien provide me with relief when self-doubt and despair assault me. In the weeks preceding  my crossroads experience I had yesterday.  “All Christianity concentrates on the man at the crossroads.”

Talking with my manager during our weekly meeting, I looked for feedback on a new company position I was interested in. “Why did you apply for this position?” he asked. I replied, “The creative aspect and the possibility to increase my writing skills.” He continued to press on as to why exactly I enjoyed writing and advised that my career is what I choose to make of it. As a person who struggled [I guess still struggles] with OCD, I tend to like to view the world as black and white; either/or; through an if/then lens. I tried to get my manager to make the choice for me on my next path. “Where do you see yourself [career wise] in the next few years?” he asked.

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There are a few moments in life where you experience a profound clarity. Almost eerily clear. The best example I remember is when I started dating my [then future] wife in college. A mere month into dating I got a sense that I was meant to marry this girl. I heard a voice in my mind saying, “Matt you are going to marry her!” Yesterday’s conversation with my manager produced a similar lucidity of thought. “What do you want to do with your career Matt?” I responded [in my head] almost immediately, “A writer, I want to be a writer and spread the Catholic faith!!” Outside of my mind, I replied to my manager, “Well, you know I am not completely sure…” I continued to make general statements about how I enjoyed writing and about becoming a stay-at-home father to assist with my son with special needs.

Why do we shy away from God’s clear direction at a “crossroad moment” of our life? Personally, I struggle with the notion that such clear moments exist. Clarity in this chaotic world is bold. Truth is daring. As Chesterton put it, “Life [according to the faith] is very much like a serial story in a magazine: life ends with a promise (or menace)…But the point is that a story is exciting because it has in it so strong an element of will, of what theology calls free will” (Orthodoxy p. 128).  Sometimes I wish there was a pre-determined path laid out for me. In some ways, lacking freedom is less stressful. But such mentality stems from the Evil One and leads to doubt in God’s providential plan for us. It seems crazy that I am so sure that I am called to be a Catholic writer. Looking back on my life, I had the exact same doubt when I dated my wife. I thought, “It is not possible to be so certain about marrying so short in the dating process!” Marrying my wife, my best helpmate toward Heaven, was [and is] in God’s plan.

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“All Christianity concentrates on the man at the crossroads.” I sincerely hope that I am able be an instrument of God help bring peace and clarity to people who suffer periods of doubt and confusion. Thank you for reading and continue to pray for me to follow God’s path!

Thank you for sharing!

The Magic of Living

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What am I doing here? Is this all to life? Sitting in my work cubicle these thoughts occasionally cross my mind. Struggling with the daily routine of work and family life, my mind tends to wander off toward fantasy. I think part it is it due to a desire to escape my mundane situation. Reading fantasy allows me to attain that escapism while remaining in the comfort of my living room. After putting my children to bed and waiting for my wife to return from errand-running, I had some free time to read. Picking up Chesterton’s Orthodoxy I spent about twenty minutes navigating his semi-autobiographical work. Suddenly, I stopped at a passage from his fourth chapter entitled The Ethics of Elfland. The great English wordsmith writes, “I have said that stories of magic alone can express my sense that life is not only a pleasure but a kind of eccentric privilege” (Orthodoxy p. 54).

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In other words, life is not something to be merely enjoyed via self-gratification, but rather my existence on this earth should be viewed through the lens of privilege—life is a free gift. My children point to this reality, often lost as we reach adulthood, that life should be joyful. The strangeness and idiosyncrasies of the universe should be something to revel in, not quake at the seeming despair when we encounter things and events that do not fit our controlled world. On the other end of the adult’s worldview is perceiving re-occurrence as a bad thing or something to be avoided. Chesterton put it this way,

All towering materialism which dominates the modern world rest ultimately upon one assumption; a false assumption. It is supposed that if a thing goes on repeating itself it is probably dead; a piece of clockwork. People feel that if the universe was personal it would vary; if the sun were alive it would dance. This is a fallacy even in relation known to fact…A man varies his movements because of some slight element of failure or fatigue…For grown-up people are not strong enough to exult in monotony. But perhaps God is strong enough to exult in monotony, It is possible that God says every morning, ‘Do it again’ to the sun; and every evening, ‘Do it again’ to the moon (Orthodoxy pp. 50-51).

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Wonder and awe stems from the ability be amazed at creation even if it is the hundredth or thousandth time viewing a starry night or noticing a bird gathering straw for her nest. Children possess the magic of living—the ability to love life despite doing the same activity over and over again. Monotony, dullness, and lethargy did not enter the vocabulary of the youth. Chesterton reminded me that I need to return to my youth. I need to jettison the false assumption that repetition is inherently bad and variety alone leads to life!

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I need not enter the Pevensie’s wardrobe, or a supernatural rabbit hole, or even run headfirst toward a brick-wall on an English train station between platforms 9 and 10 [although I did visit this fictional landmark during my trip to Europe!! 🙂 ]. Instead, I am able to encounter magic in this life by visiting my children’s closet as I gaze at the array of Lego men and women scattered in an apparent random order on top of, within, and under the closet shelves. What adventures are they going on today? I can also lower myself to the level of my youngest son as his eyes open with joy at the sound of the door opening. He enjoys leaving in the morning as he gets to meander outside and gaze at the wheels of my car. How incredibly simple, yet fulfilling would life be if I approached every day as a magical experience? The life of children is akin to that of our Divine Creator—they do not get bogged down by the monotony [apparent monotony that is] in this world. I ask for the Holy Spirit to enliven my soul to view any dullness and routine in my life as a gift!

***Perhaps God is strong enough to exult in monotony, It is possible that God says every morning, ‘Do it again’ to the sun; and every evening, ‘Do it again’ to the moon”***

Thank you for sharing!